As a person with an invisible disease one of the hard parts for me is what others don't see. Recently I had a friend applaud me for the way I deal with my diabetes. I don't see this friend too often and never for more than a few hours at a time. They had this idea that I must be doing well based on what they see. But as my mum would say, "perception is everything." When I leave them, IT'S still here.
I didn't play the sob story but I kindly reminded this person that they only see a wee portion of life with diabetes. A complete outside point of view. They don't see all the little intricacies that go on behind the scene. I could easily list the tornado of frenzy but most of you know what I'm talking about.
When I witnessed most of the "Day-In-The-Life of Parenting a Child With Type 1 Diabetes" it was refreshing in a way. It was kind of nice to see someone else struggling with all the behind the scenes stuff that I struggle with. Not that I enjoyed watching them struggle, I just enjoyed the outcome of not being the only one. Barriers get broken down when I don't feel so isolated dealing with D 24/7.
It brings me back time and time again to those three words. "I GET IT". Reyna gets it. Joe gets it. Even his sister and his father Get It! That first night when Joe had a low after dinner I was right there with him understanding what was going on without having to say a word. It was even more so because literally 5 minutes later I felt the creeping suspicion that my BG was also going low. It did, and it required treatment. Maybe it's like how somebody yawning makes you yawn?
What am I getting at? It was so reassuring to be in a situation where they really truly "got it". All of it. Especially the parts that I can't even talk about. The burdens and the mental strain. They know that sometimes I cry myself to sleep when D frustrations get to me. They know the guilt that surrounds food and the bullshit high maintenance about simply going out for a stroll.
From someone who lives alone, it's nice to be "GOTTEN"
This picture has nothing to do with being "gotten" I just think it's really sweet.